This weeks’ hackathon showed how much could be accomplished in a (short) day-and-a-half. I’ve already given a brief overview but here I discuss our project – Open Research Reports and disease – in detail.
David Shotton and Tanya gray introduced Minimal Information for Infectious Disease Investigations (MIIDI). [Lively debate about whether the Minimal Info idea was useful in bioscience]. Graham Steel and Gilles Frydman brought the patient axis = ACOR (Assoc Cancer Online Resources) and PatientsLikeMe. What is absolutely clear is that:
- Patients want to be and must be equals in the use of information
- Patients have a huge interest , huge energy and increasingly community experience and knowledge
- They are seriously disadvantaged by lack of access to full-text articles (academics do not realise this)
- Bibliography is critically useful
So we are developing Bibsoup to take in selected Pubmed IDs (UKPMC) and ingest them into a Bibserver to provide a BibSoup instance. Mark MacGillivray has developed a facetted browsing technology, based on BibJSON, which is both formal and fluid. It’s easy for people to annotate and should be straightforward to extend.
Along with other presentations I have captured ours (3.20 mins) and annotated some of the footage. Currently in my Public dropbox (http://dl.dropbox.com/u/6280676/hackathon.mp4 )
We are excited with how effective the hackathon was in bringing several people together into the BibSoup cluster and how the various ideas came together. We are hoping to create a future event where patients are participants. Spent a day on Friday with Gilles Frydman discussing what would be involved.
Again thanks to Gilles, Graham, Jenny, Mark, Andrea, Mahendra, Naomi and everyone else.